I got a dandy email from the ALS Advocacy group informing me that the President has included in his budget, funding for a national ALS registry:
We are pleased to share with you that the President’s Fiscal Year 2008 Budget includes nearly $1 million to establish a national ALS registry at the Centers for Disease Control and Prevention (CDC). This is a tremendous victory for the ALS community, especially considering that the budget reduces or eliminates funding for many other health programs. This is the first time that funding for the registry has been included in the President’s budget...
Because of this, we have a great opportunity to both continue, and increase funding for an ALS registry and build on the efforts already underway at the CDC to establish a national ALS registry (Click here to learn about the projects that have been implemented by the CDC).
You can help build support for the ALS Registry Act today:
E-mail Your U.S. Representative - We urge the entire ALS community – PALS, families, and advocates – to contact their U.S. Representatives and ask them to become an original cosponsor of the ALS Registry Act. A sample letter you can e-mail to your Representative is available on our website here or by visiting the Advocacy Action Center at www.alsa.org/policy. If you do not know the name of your Representative, simply enter your zipcode in the space provided on the Advocacy Action Center and the site will identify him or her for you.
Considering that it's been nearly 68 years since Lou Gehrig gave his name to ALS and there's still no answer as to what causes ALS, and so, no cure, I say it's about frickin-frackin time.
Please write your Representative. Feel free to tell them Beloved Aunt Amy needs to get better so she can catch up on kicking Nelson's butt.